About Us
Thalassemia Screening is the process to screen for all the hemoglobinopathies, which means disorders affecting the function of hemoglobin in the blood, to find out if a person (especially a parent) is affected by Thalassemia or is a carrier of Thalassemia. The hemoglobinopathies include Alpha, Beta, Delta Thalassemia, Hemoglobin E, Hemoglobin D, Sickle Cell Anemia, Hereditary Persistence of Fetal Hemoglobin (HPFH). Ingin melihat data talasemia anda? Lihat Disini
THALASSEMIA RESEARCH CENTER
The Thalassemia Research Center (TRC) is a foundation committed to creating a better world without Thalassemia.
Our mission is to educate people at all levels of society about Thalassemia, to become the world’s most comprehensive Thalassemia screening center and database, to serve as a research and production hub for pharmaceutical preparations for Thalassemia patients, and to advocate for global Thalassemia policies.
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Williamsburg occupy sustainable snackwave gochujang. Pinterest cornhole brunch, slow-carb neutra irony.
MONTHLY REPORT
OUR MOVEMENT
- > To make the world community aware of the dangers of Thalassemia and be able to control and break the chain of Thalassemia.
- > To obtain the widest possible data on Thalassemia carriers so that it can be the basis for concrete action steps to control and break the Thalassemia chain globally.
- > To produce supplements for Thalassemia sufferers to improve their quality of life.
- > To propose policies related to Thalassemia to regulators to support global efforts in controlling and breaking the Thalassemia chain.
Screening
THALASSEMIA SCREENING
THALASSEMIA SCREENING IS AN ADVANCED GENETIC TEST CONDUCTED ON NORMAL BLOOD SAMPLES THAT HELP TO EVALUATE WHETHER A POTENTIAL PARENT OR AN INDIVIDUAL IS A CARRIER OF THE THALASSEMIA GENE OR IS AFFECTED BY THE DISORDER.
For the Future
BASED ON THIS INFORMATION, THE COUPLE CAN UNDERGO FURTHER TESTING TO FIND OUT IF THE FETUS IS AFFECTED WITH THE DISEASE, IS A CARRIER OF THE DISEASE OR IS UNAFFECTED. BECAUSE GENETIC DISORDERS ARE NON-TREATABLE, A CHILD AFFECTED WITH B-THALASSEMIA REQUIRES SPECIAL AND EXPENSIVE MEDICAL TREATMENT WITH LOW SURVIVAL RATES. SCREENINGS GIVE PARENTS THE FREEDOM TO MAKE INFORMED DECISIONS CONCERNING THEIR PREGNANCY & FUTURE.
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